Wednesday, October 14, 2009

#58 News about Parkinson’s Study

A news report from NY Times.
Google Co-Founder Backs Vast Parkinson’s Study

Mutation and AIDS by WSJ

Please share your thoughts (i.e. commenting) after reading the report.

20 comments:

  1. Janet Lewis

    Just because a person carries the genetic mutation for Parkinson's Disease or any other disease for that matter, does not mean that the disease will be expressed. As Mr. Brin said, he has a 50/50 chance of getting the disease. Some people might be told the same thing but then worry for the rest of their lives about getting sick. I think it would be better not to know especially if there is nothing you can do about it.

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  2. I think it is a neat idea, but I do think there are some flaws just as the article said. All the clients will just submit data online as to their condition and who knows if any of them are even telling the turth. Sometimes people don't realize the severity of their condition or they may be hypochondriacs and think more of their condition than they should. I think the reason it is gaining so much publicity is because Brin is funding it and he founded Google. 10,000 is alot of people to study so hopefully some good information will come out of this. After reading the article, I would like to go have my genes checked out even though if I was predispostitioned for something bad I would not want to live the rest of my life in dread thinking I was going to get that disease.

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  3. I think that this is very interesting. It is nice to see that someone so rich is doing something beneficial like this with his money rather than blowing it on yachts and cars, etc. The fact that this disease is very close to him with his mother having it, as well as him having the genetic mutation himself, will definitely be some major motivation for this cause. Hopefully the research will be successful and something can be done.

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  4. I think that what Mr. Brin is doing is a good thing because we need to find a cure for Parkinson's, just like we do any other disease. With more research being conducted, it is only a matter of time before some type of medicine or genetic mutation can occur. My great-grandfather has Parkinson's and sort of has to take care of my great-grandmother who has a form of dementia. Although he has a very sharp mind, it is still hard for him to get around because of what the Parkinson's has done to his body. I think it is really good that Mr. Brin is funding the research because he certainly has the funds to do so and it makes the fees cheaper on the other customers. If the researchers of 23andMe can figure out a way to remove the genetic mutation, it would save many people from the harmful affects of the disease. Like he said, he has a 50/50 chance of getting Parkinson's, but he also thinks there is a 50/50 chance that technology will change that in the next 20-25 years that the disease would develop. Technology is improving every day, and by the time I am in my 50's or 60's, I hope that technology has improved so much that there will be some sort of insight to preventing the disease from surfacing.

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  5. I think that it is great that Mr. Brin is funding this study to find the causes of Parkinson's Disease. I think because he is paying for the study, more people will participate because they will be able to afford it. With more people participating, perhaps there is a greater chance of finding the cause of Parkinson's. The only thing I think could cause potential problems is the fact that people are simply reporting their symptoms instead of being examined by a doctor. Being examined by a trained physician would probably produce more reliable results. I do think that it is a very noble idea.

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  6. I think it is a good idea, and because Mr. Brin is funding it the study is going to get alot of publicity. Not to mention what Google will be able to do for the study.

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  7. I think it's honorable of Brin to fund this project. It will be interesting to see whether or not the research will be beneficial. There are flaws, but it's worth trying to see if it is successful.

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  8. Brin said he had a 50/50 chance of the disease. Just because you have a chance doesn't mean you actually have it. You could just carry it and never get the disease. The funding is a good idea.

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  9. This was a very interesting article on a study that is being done about Parkinson's disease. I liked the part where Eric Lander said it was a "googley" thing to do.:)
    At first, I didn't understand exactly what 23andMe meant, but I figured it out and I think it's pretty neat. It's a very creative name.
    I think it's interesting that they are collecting the data online. They obviously won't be getting a random sample, but I guess that doesn't matter when your studying a disease and DNA.
    I think it's so amazing how we can now examine our DNA to predict diseases and hope to find cures. 50 or so years ago, this would've been unthinkable! Examining DNA and collecting data on a computer?!? It just goes to show... the possibilities are endless!
    -Imani

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  10. The study of this disease is something that may benefit the future studies of Parkinson's Disease and could help find a cure. Mr. Brin is doing a good thing. The more research the better we can understand this disease. It will help determine who has the gene or not, even though we do not have a cure yet.

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  11. This article was very interesting. I found myself thinking that it was a good idea to go about testing people's DNA, for the right reasons of course. It seems like Mr. Brin and the company 23andMe wants to help people and conduct their own research. I do think that all in all it is for a good cause. Anytime people can get tested early on for a disease is good. If caught sooner people can prepare their life for it and hopefully medicine would be created to help treat individuals with the disease. I do hope that Mr. Brin and 23andMe is doing the research for the right reasons.

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  12. I have been a fan of Micheal J Fox since the mid 80's and therefore have followed the work he has done with this disease. I have seen him battle his condition from the begining and know the stories of his really bad days when he had to stop filming. He has done a lot of charities for just such purpose and it is nice to see a person with this kind of financial assets step in. Anyone who knows an individual with Parkinson's would agree that even though there is no current cure for it we should strive for new discoveries. I think it is great that The co founder of Google is stepping up on behalf of some one other than himself. Sure there is a 50/50 chance of him having it or not but his actions are noble either way because it will possibly benefit others.

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  13. I think it's a good idea that Mr. Brin wants to help with the research that is being done with Parkinson's Disease, but I also wonder if he is only helping out because his mother was diagnosed with it and he might have a chance (50/50) of having Parkinson's later on. But either way it is honorable that he is helping fund this research. But I also don't like the idea of people just submitting their data online because if they have not been medically seen by a doctor that could cause a flaw in their research. But it is beneficial that someone with money is helping this fund because it does make it cheaper on the candidates who decide to volunteer to have the research done. I hope they find a way to remove the mutation and I applaud the fact that Mr. Brin is trying to help with that.

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  14. I think its good that we are trying to make a break through in Parkinson's. Hopefully it won't cause too much controversy because Mr. Brin is paying for most of it and not the government/the tax payers dollars. I don't think I would want to know if I might have the potential for the disease because I would start to base my life around the disease. This has benefits and drawbacks. Hopefully the benefits will out way the drawbacks. Also a person in the article brought up a good point that the people are reporting their symptoms and not having a doctor report them. This could lead to bias, which would affect the whole experiment. It will be interesting to see how this plays out. Although I do wonder if this experiment is recieving more publicity because it is backed by a celebrity.

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  15. I think that this study has its ups and downs. It would be great for the company to recruit 10,000 people but since they are doing web-based surveys, the information and conclusions could be off. If they could cut the number of patients they need and do individual checks by professionals, I think it would be more accurate. A study identical to this has already been conducted with less than expected results but I think Mr. Brin has a good thing going here and doing the study again with a different person might result in different results. I think its a good study for the most part and hopefully returns useful results and help make conclusions about this disease.

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  16. It is honorable that Brin is funding the study to help find the causes of Parkinson's Disease. The help from the media to spread the word about what he is doing is going to help funding and possible help find the cure. This is a great thing that Brin is doing this because he has the money to help find the cure.

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  17. I think that Mr. Brin is an awesome guy for investing so much money in this. However, I do wonder why they are spending all this money and time in research when research has already been done on Parkinson's. But, maybe with more participants, it will be a more intensive study. With all the money that is going into this you would think they would work out all the flaws so this research is as free from error as possible. It's crazy how far technology has come to allow this study to even be possible! I would like to know if they got their 10,000 participants and what has happened with the study since this was published in March.

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  18. Sounds like a good idea; anything that brings attention and research to a very widespread disease. And because of Mr. Fox being a celebrity it should get plenty of attention and backing.

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  19. I think what Mr. Brin is doing is a great thing. He has the money and the power to help others learn more about their diseases. He also wants to do a study on similar diseases and help those who are affected. Although this disease is not curable, this research may help them to develop a technolgy that may help in the future.

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  20. I think that is a good plan. Although as Mr. Brin said there is a 50/50 chance of getting the disease. As for him and everyone else no one would want to get the Parkinson`s Disease or any other disease. I do not like the idea of being told something and then worring about it. I think that would be neat to have your genes checked out. Although in the end there would be good news or bad news. I just would not like to know if I would get the disease or anyone in my family. Just living with that and thinking about knowing if you or your family would get it. With this reasearch it would be great for someone to find out they would be getting this disease or any other disease and that disease could be prevented. It would be neat to find out about your gene but would be better if there was something that could help get rid of any disease.

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